Tonight Mummy asked me to watch a program with her on Sky. It’s about a boy in Colombia who had a big mole on his back. 
Mummy told me that in about two weeks, Didier the Turtle Boy will be coming to London.
Mummy had told me a lot about Didier. She met him twice in Bogota after his operation to get that huge nevus off his back.
Mummy showed me photos of him. I am looking forward to meeting him.
May’s comment: Didier and his mother, Luz will be coming to London to be a part of the crucial research for Congenital Melanocytic Nevus at Great Ormond Street Hospital. He will be meeting with Dr. Kinsler and Mr. Bulstrode who was in Bogota during his operation. This way when a cure has been found for CMN, Didier will benefit from the research.
We made contact with Infantis Sanum Foundation, a local NGO to get Avianca Airlines to sponsor their flights to London. They helped Didier and his mother Luz to get their passports and visas – took a long while! and finally they will be on their way to London in two weeks time.
Caring Matters Now, the support group for CMN sufferers are partially sponsoring his medical costs at GOSG and have also set up a Just Giving page for Didier for anyone who wants to help with his ongoing need for medical care – Just Giving for Didier
3 Responses
Darcy, You have the most amazing woman as your mom. She has done so much for a little boy half way across the world she didn’t even know. She is an inspiration to us all to find the way we can give back in this world!
Where is he at now? Has he inherited his grandfather’s farm. How is he doing? Any relapses?
I haven’t caught up with him. His mother has cancer. And we are sporadically on Facebook. And she doesn’t know English well enough to communicate.